Happy New Year lovelies!!!
Today is the 2nd Anniversary of the day we brought our boy home from hospital.
He spent his first 138 days within the confines of Wishaw General and believe me when I say that it felt more like years than days.
Today marks his 869th day on this planet and I honestly mean it when I say it feels like only yesterday that we brought him home. All snuggly in his (far too big) Emile et Rose outfit, carefully placed in his (even bigger) car seat.
After fighting so hard to bring him home, it really did take Michael and I a good few days to get over the shock of figuring out what the hell we were supposed to do with this medically fragile little “newborn”!
He has since filled our lives with more joy and love than we ever knew was possible and my heart swells more and more every single day I wake up to his beautiful face.
We had our first appointment of the year yesterday with his new consultant. Despite being discharged from Chronic Lung & Neuro, Matthews doctors are fully aware that he is in no way out of the woods with his health and so his care has simply been passed on to another service… this time it’s the Asthma & Gastroenterology Clinic.
Our care plan going forward for the year will include the following NHS/ Local Council services:
Paediatric Occupational Therapy
Speech & Language Therapy
So as ever, it’ll be a full year for my boy and us.
I am also going to start documenting Matthews behaviours and development in written and video format. It’s amazing how many things I forget about when we are at appointments because of the unending list of concerns we have. But by doing this, it means when it comes to “official diagnosis”, we will have all of the information to hand and on video.
I will sign off on this post with a bit of symmetry (which I love 🤪)… Matthew starting 2017 and Matthew ending 2017! ⬇️⬇️⬇️
P.s. Yes this is the same snowsuit & hat… this is the silver lining of having a small baby… their clothes fit for longer! 💚