I thought i’d write a little post related to all of the great information I have found while doing some research on my boys sensory condition.
I’m one of those people that needs as much information as possible in order to properly prepare myself. I’ve found that there is an abundance of wonderful first hand experiences of mums and dads going through the same sensory issues. However, there’s also a bucket load of absolute garbage that you have to weed through. So I thought since I’ve already done all the weeding that i’d share the great sites and people I’ve found.
This is a Facebook Page led by Coopers mum Kate. The only way I can describe Kate and this page is by saying she, and it, are simply incredible. She is sooo open and honest about the struggles she and her family all go through with Coopers condition. As well as sharing in all the wonderful moments they experience together. She posts video diaries all the time and if you are looking to be inspired then this lady will do that for you!
This amazing lady is called Stacey and is a mummy of 2, with her youngest Jacob on the Autism Spectrum. She is the ultimate advocate of Autism Awareness. As well as being so real and so relatable that you will feel instantly like shes a friend. She vlogs and blogs regarding Jacobs autism journey and is always willing to give advice to those going through the same process. She is great – definitely give her a follow!
This lovely lady Julia, mummy to Michael who was diagnosed with Autism at the age of 2. She is a former Tax Lawyer, turned ABA Therapist for her son. She, like the other mums I’ve mentioned is just brilliant. Her aim with her blog is to help other parents, while documenting her own journey. She writes beautifully so eloquent that you will enjoy reading along with whatever she has to say.
This organisation, if you live in the UK is the leading charity for Autistic people and their families. They offer a wealth of knowledge from the diagnosis process to local schools and nurseries where Autistic people are catered for. There are real life stories to read and even a shop where you can purchase merchandise and educational resources to gain a better understanding of the condition. Like I said, if you’re in the UK, get yourself along to this site and get involved.
This is a brilliant site whereby an abundance of “Scary Mommy” contributors create the content. It’s funny, smart and you can easily get lost for hours among it’s articles. There is lots of posts about Autism and all things “Spectrum” related. It’s written so beautifully and by so many different, talented women that you get a whole host of different perspectives and information to work with. Love this site so much. And the Twitter feed is just as great!
I think the most important thing that I’ve learned from all of these wonderful people, is that no two cases are the same. There are similarities, but ultimately each child’s symptoms, sensory challenges and behaviours are completely unique to them. It doesn’t do you or anyone else in your family any good to make comparisons, but for someone like me who is waiting (ever so impatiently) on the diagnosis process moving forward, it means I have copious amounts of reading material and can be as prepared as possible for when diagnosis happens!